Why am I shaking more today? Did I sleep badly? Is my medication wearing off sooner? Why do some days feel easier — and others so much harder?

Symptoms like tremor, dyskinesia and slowness don’t stay the same. They rise and fall throughout the day, influenced by medication timing, stress, sleep, food, exercise, or simply the unpredictability of Parkinson’s itself. And yet, most people are left guessing — trying to remember how they felt last week, or whether a new treatment is really helping.

It seems simple: A way to see what’s happening inside their own body. A way to understand their patterns. A way to feel more in control.

Apple Watches and phone apps can measure Parkinson’s symptoms at home. The technology exists. But today’s commercial solutions often leave people disappointed:

• They cost hundreds of dollars per year — sometimes over a thousand — putting real insight out of reach for many.

• They show data in ways that feel confusing, incomplete, or impossible to customize.

• And most importantly, your data never truly belongs to you. Users cannot download it, share it freely, or keep it private. Instead, many apps store data in commercial databases designed to generate revenue through research contracts, insurance partners or subscription models.

For people living with Parkinson’s, that means something deeply personal — your health, your patterns, your story — becomes something you can’t access or control.

We believe it should be different.